Mountain States Genetics Foundation

Creating Change Through Advocacy
- Advocacy and this ManualMultipartite Advocacy Model
  - Components of the Multipartite Advocacy Model Lay Advocacy Legal Advocacy Protective Advocacy
  - Professional Advocacy
  Where Do I Fit?
- Advocacy Plan
  - Steps to an Advocacy Plan Identify the problem – Problem Statement
  - Desired outcome or decision - Goal Statement
  - Who can make the decision to implement the goal?
  - Strategies
  - Consequences
  - Determining when it is time to escalate
Watch Out! Slippery Advocacy Plan Ahead: Safeguarding Your Advocacy Efforts
A Systems Lay Advocacy Story and Plan: Where Do We Belong?
Steps to a Systems Lay Advocacy Plan: How could you solve Tim’s problem?
An Individual Lay Advocacy Story and Plan
- Righting A Wrong?
- Steps to an Individual Lay Advocacy Plan
- How could you solve Betty and Bob’s Problem?
A Systems Legal Advocacy Story and Plan
- How Much Is Private?
- Steps to a Systems Legal Advocacy Plan
- How could you solve Deni and Senator Napp’s problem?
An Individual Legal Advocacy Story and Plan
- Privacy Belongs To Whom?
- Steps to An Individual Legal Advocacy Plan
- How could you solve Jane and Gene’s problem?
A Systems Protective Advocacy Story and Plan
- How Do We Make The Rules Fair?
- Steps to a Systems Protective Advocacy Plan
- How could you solve Dr. Hiker’s problem?
An Individual Protective Advocacy Story and Plan
- Ready, Set, Go?
- Steps to an Individual Protective Advocacy Plan
- How could you solve Dan’s problem?
A Systems Professional Advocacy Story and Plan
- Go? Where?
- Steps to a Systems Professional Advocacy Plan
- How could you solve Lisa’s problem?
An Individual Professional Advocacy Story and Plan
- What is the Right Answer?
- Steps to an Individual Professional Advocacy Plan
- How could you solve Judy’s problem?

Supplemental Information

Guidelines for Genetics Services Delivery

A. Population Served
B. Availability Of Services and Accessibility
C. Clinical Requirements

Medical history / background information

Laboratory tests and physical exam

Counseling and education

Specific Situations

Pregnancies

Newborns

Young Children

Adolescents and Adults

D. Follow-up Requirements
E. Genetics Services Providers / Personnel Requirements
F. Nongeneticist Health Care Providers
G. The System Requirements
H. Confidentiality and Ethical Issues
I. Cost Coverage / Funding

About the Mountain States Genetics Network
Consumer Issues Committee

The Mountain States Genetics Network (MSGN) was established in 1984 and was funded by a grant (#MCJ-081002-02) from the U.S. Department of Health and Human Services, Division of Maternal and Child Health, Genetic Diseases Services Branch.The MoStGeNe Consumer Issues Committee is one of several committees functioning under the MoStGeNe umbrella. Its members bring consumer perspectives to the network's activities, facilitate consumer members’ work within the network, and provide educational programs for consumers about genetics, new technologies, and legislative advocacy.

COMMITTEE MEMBERS
Participating in this project:

Ginger Dodge
Joyce Dolcourt
Susan Duffy Doris Husted
Rod Slaght
Vickie Venne

Want to Know More?

To obtain more information about this committee and/or this project, please email us at joycehooker@mostgene.org.

Have We Gotten Too Big for Our Genes? And How Do We Get a Better Fit? is not copyrighted. Readers are free to duplicate all or parts of its contents. Have We Gotten Too Big for Our Genes? And How Do We Get a Better Fit? is published for persons interested in applying advocacy to situations, which may result because of advances in genetics. In accordance with accepted publication standards, we request acknowledgement in print of any article reproduced in another publication. The views expressed in the publication do not necessarily reflect local, state, or federal policy.