Directory of Online
Genetic Support Groups

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The inclusion of any resource or link in MSGF does not imply endorsement. They are provided for educational purposes only. Consult with your health care provider regarding how any educational information found on the Internet may apply to your own situation.

	= Genetic Alliance Member
	= NORD Member
	= Medical Advisory

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	Cancer
	National Cancer Institute
	American Cancer Society
	National Childhood Cancer Foundation
	Candlelighters Childhood Cancer Foundation
	Y-ME: Breast Cancer Information and Support
	FORCE: Facing Our Risk of Cancer Empowered - for individuals with an increased risk for breast and/or ovarian cancer
	Carbohydrate Deficient Glycoprotien Syndrome Society
	Cardio-Facio-Cutaneous Syndrome Family Network
	United Cerebral Palsy Associations
	Cerebrocostomandibular Syndrome Support Group
	Charcot-Marie-Tooth (CMT)
	CMTnet
	CMT International
	Charcot-Marie-Tooth Association
	Carnitine Palmitoyl Transferase Deficiency
	CHARGE Syndrome Foundation
	Charge Family Support Group
	Chromosome Abnormalities
	Chromosome Deletion Outreach
	Chromosome 4
	Wolf-Hirschorn Syndrome: 4p- Parent Network Homepage
	Chromosome 5
	Cri du Chat syndrome Support Group (Culcheth, England)
	5p- Society 'Cri du Chat syndrome'
	Chromosome 9
	Trisomy 9 International Parent Support: "9TIPS"
	Chromosome 11
	11q Research and Resource Group
	International 11;22 Translocation Network
	European Chromosome 11q Network
	Chromosome 13
	SOFT
	SOFT - U.K.
	Chromosome 16
	Disorders of Chromosome 16 Foundation
	Chromosome 17
	Smith-Magenis Syndrome: PRISMS
	Chromosome 18
	Chromosome 18 Registry & Research Society
	SOFT
	SOFT - U.K.
	Tetrasomy 18P
	Chromosome 22
	INTERNATIONAL 11;22 TRANSLOCATION NETWORK
	Chromosome 22 Central (all chromosome 22 abnormalities)
	X Chromosome
	Klinefelter Syndrome & Associates
	Turner's Syndrome Society of the United States
	Triple-X Syndrome Support Group
	XXYY Syndrome Project
	Chronic Fatigue Syndrome: CIFDS Assoc. of America
	Chronic Granulomatosis Disease
	Chronic Progressive External Opthalmoplegia (CPEO): @ UMDF
	Cleft Lip & Palate
	Wide Smiles	.........
	American Cleft Palate-Craniofacial Association
	AboutFace
	Club Foot
	Coffin-Lowry Syndrome Foundation
	Congenital Adrenal Hyperplasia
	Congenital Diaphragmatic Hernia: CHERUBS
	Cooley's Anemia Foundation
	Cornelia de Lange Syndrome Foundation, INC.
	Craniofacial Disorders
	About Face International
	Children's Craniofacial Association
	Cri du Chat Syndrome
	Cri Du Chat Syndrome Support Group - U.K.
	5p- Society
	Crouzon Syndrome
	About Face International
	Crouzon Support Network
	Cystic Fibrosis
	Cystic Fibrosis.com
	Cystic Fibrosis Foundation
	Canadian Cystic Fibrosis Foundation
	Cystinuria Support Network
	Cytochrome C Oxidase (COX) Deficiency: @ UMDF

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	Deafness Resources
	Dercum's Disease
	Diabetes
	American Diabetes Association
	National Institute of Diabetes at the NIH
	Association of Congenital Diaphragmatic Hernia Research, Advocacy & Support
	Di George syndrome: 22q and you newsletter: Published by the Children's Hospital of Philadelphia
	Down Syndrome
	Down Syndrome Research Foundation
	Mile High Down Syndrome Association (mountain states)
	National Down Syndrome Society
	National Down Syndrome Congress
	Riverbend Down Syndrome Parent Support Group Southwestern Illinois
	Down Syndrome Online Advocacy Group (DSOAG)
	The Up Side of Downs of Greater Cleveland
	Dwarfism
	Little People of America (LPA)
	Human Growth Foundation
	Dysautonomia	.....
	International Dyslexia Association
	Dystonia Foundation
	Dystrophic Epidermolysis Bullosa Research Association

Directory of Online Genetic Support Groups

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Directory of Online
Genetic Support Groups