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Directory of Online
Genetic Support Groups

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The inclusion of any resource or link in MSGF does not imply endorsement. They are provided for educational purposes only.  Consult with your health care provider regarding how any educational information found on the Internet may apply to your own situation.

= Genetic Alliance Member
= NORD Member
= Medical Advisory

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Macular Degeneration Foundation  
Malignant Hyperthermia      
  Canadian Malignant Hyperthermia Association
  Malignant Hyperthermia Association of the United States
International Society for Mannosidosis & Related Diseases    
Maple Syrup Urine Disease (MSUD) Family Support Group
Marfan Syndrome      
  National Marfan Foundation  
  Marfan Association United Kingdom    
Marfan Association - Canada  
Marinesco-Sjogren Syndrome
Mastocytosis Society Inc.    
McCune-Albright syndrome: At the Magic Foundation for Children's Growth  
Metachromatic Leukodystrophy
Foundation for Nager & Miller Syndromes
Miscarriage      
  SANDS - a support group for parents who experience miscarriage, stillbirth, or neonatal death.      
  Hygeia: An Online Journal for Pregnancy and Neonatal Loss. "A new resource for women's health and healing." Maintained by Michael Berman, M.D.      
Mitochondrial Diseases      
  The Mitochondrial Disease Outreach Center    
  Mitochondrial Cytopathy: at UMDF    
  Mitochondrial Encephalomyopathy Lactic Acidosis & Stroke-like episodes (MELAS): at UMDF    
  Mitochondrial Encephalopathy: at UMDF    
  Mitochondrial Myopathy: at UMDF    
  The Mitochondrial World    
Moebius Syndrome Foundation  
Morquio Syndrome: at the MPS Society    
Mucolipidosis IV Foundation
Mucopolysaccharidosis      
  Mucopolysaccharidosis Society - U.S.A.      
  The Canadian Mucopolysaccharidosis Society      
Multiple Hereditary Exostoses      
  MHE and Me - A Support Group for Kids with Multiple Hereditary Exostoses      
  The MHE Coalition  
Multiple Sclerosis      

Direct-MS: Multiple Sclerosis Support    
National Multiple Sclerosis Society    
  International MS Support Foundation    
  The World of Multiple Sclerosis    
  Multiple Sclerosis Society of Canada    
Muscular Dystrophy      
  Muscular Dystrophy Association: USA, Canada, Australia    
  Parent Project Muscular Dystrophy - Duchenne MD      
Myasthenia Gravis      
  Myasthenia Gravis Links    
  Myasthenia Gravis Foundation of America  
The Myelin Project      
Myoclonic Epilepsy and Regged-Red Fibers (MERFF): at UMDF    
Myoneurogastrointestinal Disorder and Encephalopathy (MNGIE): at UMDF    
X-linked Myotubular Myopathy Resource Group  

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NADH Dehydrogenase (NADH-CoQ reductase) Deficiency: at UMDF    
Foundation for Nager & Miller Syndromes    
Nail Patella Syndrome      
  Nail Patella Syndrome  
  Nail Patella Syndrome Worldwide  
Neonatal Death - see Miscarriage      
Neurofibromatosis      
National Neurofibromatosis Foundation
  Neurofibromatosis Inc.  
Neuropathy Ataxia and Retinitis Pigmentosa (NARP): at UMDF  
Niemann-Pick Disease      
  National Niemann-Pick Disease Foundation Inc.    
Noonan Syndrome      
  Noonan Syndrome Society - U.K.      
  Noonan Syndrome Support Group - U.S.  



 

Bob McCurdy