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Directory of Online
Genetic Support Groups

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The inclusion of any resource or link in MSGF does not imply endorsement. They are provided for educational purposes only.  Consult with your health care provider regarding how any educational information found on the Internet may apply to your own situation.

= Genetic Alliance Member
= NORD Member
= Medical Advisory

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  For FG Syndrome also try the FG Syndrome Family Alliance    
Opsoclonus-Myoclonus Support Network  
Organic Acidemia Association
Osler-Weber-Rendu at HHT Foundation International Inc.  
Osteogenesis Imperfecta (OI) Foundation  
Oxalosis & Hyperoxaluria Foundation    

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Cure Paralysis Now    
Parry-Romberg syndrome    
Pearson Syndrome: at UMDF      
Peter's Anomaly Support Group    
The Network for Peutz Jeghers syndrome and Juvenile Polyposis Syndrome  
Pfeiffers Syndrome - MacKenzie's Page      
Pierre Robin Network      
National PKU News    
Polycystic Kidney Research Foundation  
Polycystic Ovarian Syndrome Association    
Porphyria      
  American Porphyria Foundation
  Porphyria - A patients guide: Drug lists, diagnosis, management & therapy. By Professor Michael R. Moore at the Porphyria Research Unit, University of Queensland      
Prader-Willi Syndrome      
  Prader-Willi Syndrome Association
  Prader-Willi Syndrome Arizona Association      
Pregnancy Loss- see Miscarriage      
Primary Ciliary Dyskinesia (PCD)/Kartagener Syndrome (KS)      
  PCD Foundation      
  P-C-D Org      
Hutchinson-Gilford Progeria      
The Proteus syndrome Foundation
Pseudoxanthoma Elasticum (PXE)      
  Pseudoxanthoma Elasticum (PXE) International, Inc.  
  PXE support group - U.K.      
National Psoriasis Foundation
Purine Metabolic Patient's Association      
Pyruvate Carboxylase Deficiency: at UMDF      
Pyruvate Dehydrogenase Deficiency: at UMDF