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Regional Directory of Genetic Services

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Online Genetic Support Groups Directory

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COMMITTEES:
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Prenatal Diagnosis
Public Health

Human Genetics in the News

• Genetic and Health Weekly Update - CDC

• HUM-MOLGEN

• Genetics News from Yahoo

• News from the NHGRI

Professional Organizations

• American Society of Human Genetics: (ASHG)

• American College of Medical Genetics: (ACMG)

• American College of Obstetricians and Gynecology: (ACOG)

• Association of Genetic Technologists: (AGT)

• Association for Molecular Pathology: (AMP)

• International Society of Nurses in Genetics: (ISONG)

• March of Dimes

  • Newborn Screening Tests

  • Information on Pregnancy & Newborns

• National Society of Genetic Counselors: (NSGC)

• Society for Maternal-Fetal Medicine

Legislative and Governmental Information

• THOMAS - Legislative Information on the Internet
  A searchable index from the Library of Congress. Find out what is happening in congress right now, what bills are under consideration, what bills have been enacted into law, and much more. A nice feature is that you can search bills by keyword.

• The ARC Legislative Action Center

• The Health Insurance Portability and Accountability Act of 1996
  Questions & Answers: Recent Changes in Health Care Law from the U.S. Department of Labor

• Council for Responsible Genetics
  CRG is a non-profit bio-ethics organization devoted to fostering public debate about the social, ethical, and environmental implications of the new genetic technologies.

• State and Local Government Links - Library of Congress
  Interested in what is happening in your state? This site provides links to state government web pages, and other state government resources including state maps.

• Americans with Disabilities Act Document Center
  ADA Statute, Regulations, ADAAG (Americans with Disabilities Act Accessibility Guidelines), Federally Reviewed Tech Sheets, and Other Assistance Documents 

• Secretary's Advisory Committee on Genetics, Health. and Society
  The SACGHS advises the government about all aspects of the development and use of genetic tests and services, including the complex medical, ethical, legal, and social issues raised by genetic testing.

Other Informational Sites

• Genetics Home Reference-Your Guide to Understanding Genetic Conditions

• Angelman syndrome

• Paternity Test
  Provides accurate, convenient, affordable, confidential DNA
  paternity test and the highest level of service.

• Cancer Genome Atlas

• The National Human Genome Research Institute
  At the National Institutes of Health, this site includes a large number of topics in the field of human genetics including:

• Grant Information

• Ethical, Legal and Social Implications

• Policy and Ethics

• In the News

• The Human Genome Project

• Educational Opportunities
   

• Office of Genetics and Disease Prevention
  At the Centers for Disease Control and Prevention (CDC), "This site provides access to current information and global resources on the impact of human genetic research and the Human Genome Project on epidemiology, public health, disease prevention and health promotion.

• Genetic Alliance
  Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.